- Alliance of Genetic Support Groups
national coalition of consumers, professionals and genetic support groups to voice the common concerns of children, adults and families living with, and at risk for, genetic conditions.
http://www.geneticalliance.org/ (Added: Mon Jan 01 2001 Hits: 21 Rating: 0.00 Votes: 0) Rate It Review It - Chromosome 22 Central
Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.
http://www.nt.net/~a815/chr22.htm (Added: Mon Jan 01 2001 Hits: 25 Rating: 0.00 Votes: 0) Rate It Review It - Cornelia de Lange Syndrome (CdLS) Foundation Outreach
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
http://www.cdlsusa.org (Added: Mon Jan 01 2001 Hits: 24 Rating: 0.00 Votes: 0) Rate It Review It - S.O.F.T.
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
http://www.soft.org.uk (Added: Mon Jan 01 2001 Hits: 27 Rating: 0.00 Votes: 0) Rate It Review It - S.O.F.T.
Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
http://www.trisomy.org/ (Added: Mon Jan 01 2001 Hits: 19 Rating: 0.00 Votes: 0) Rate It Review It |