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Top Level : Health : Consumer Support Groups : Facial Differences

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Apert Syndrome (6)

Cleft Lip and Palate (5)

Craniosynostosis (0)

Langer-Giedion Syndrome (2)

Parry-Rombergs Syndrome (3)

Sagittal Synostosis (1)

Stickler's Syndrome (2)

Treacher Collins Syndrome (3)

Links:

AboutFace
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.Aboutfaceinternational.org
(Added: Mon Jan 01 2001 Hits: 39 Rating: 0.00 Votes: 0)
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Cancer Of The Eye Linkline (CELL)
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
http://pages.zoom.co.uk/cell/index.htm
(Added: Mon Jan 01 2001 Hits: 28 Rating: 0.00 Votes: 0)
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Children's Craniofacial Association
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com
(Added: Mon Jan 01 2001 Hits: 33 Rating: 0.00 Votes: 0)
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FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org
(Added: Mon Jan 01 2001 Hits: 39 Rating: 0.00 Votes: 0)
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Support Works Online
Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm
(Added: Mon Jan 01 2001 Hits: 30 Rating: 0.00 Votes: 0)
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The Craniofacial Society of Great Britain and Ireland
Information about the society, which is a multidisciplinary forum for specialists.
http://www.cfsgb.org.uk/
(Added: Mon Jan 01 2001 Hits: 36 Rating: 0.00 Votes: 0)
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The Personal Side of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html
(Added: Mon Jan 01 2001 Hits: 25 Rating: 0.00 Votes: 0)
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